I’m so thankful to Joni and Friends for putting together this video. It is a five minute Autism 101 course to help persons who don’t deal with autism directly understand the disorder and how it affects families. If there is anyone in your family, church, or circle of influence dealing with autism, take five minutes to watch this so that you can be a more informed conduit of God’s love and grace.
Autism Discussion on Moody Radio
Yesterday, Shannon Royce from Chosen Families was interviewed on Moody Radio’s program In the Market with Janet Parshall. I encourage you to click the link and listen to their discussion on autism. It is well-balanced, honest, and encouraging. Shannon mentions our family around the 20:30 mark, but I encourage you to listen to the program in its entirety.
World Autism Awareness Day and a Poem
Today is World Autism Awareness Day. Please spend a few moments today praying for the millions of families around the world coping with this disorder.
Autism is not a death sentence. God redeems autism for his own glory, and there are many examples of persons with Autism Spectrum Disorder doing great things and, more importantly, becoming great people. However, these outcomes are not independent of the suffering endured by families for years at a time. Our family knows firsthand both the joys and the sorrows of autism.
Our culture, in its flippancy, often skips too quickly to the happy ending. So, on this day, I want to share with you an incredibly personal poem that will, Lord willing, help you identify with our suffering and with the suffering of other families dealing with this same disorder. Living with autism isn’t always pretty. This poem verbalizes some of the darkest times and darkest feelings, and yet we have hope in God. Pray that we, and others, will not lose sight of His rays of hope in this often dark experience.
Jessi’s Wedding Reception
Two hours in a car
with you, delirious.
Blue eyes bright as stars
covered by hazy cirrus,
gray streaks of disorder.Tantrum quakes you
with no ability to calm.
My heart breaks anew,
praying, no sobbing the psalm:
“How long, O Lord?”My sister in white,
I didn’t see dance.
Dad won his fight.
I’m holding the lance
combatting an invisible horde.Wolves I could kill.
Giants I could slay.
Now I sit still
screaming amid the fray,
“I hate autism!”
“I hate autism.”
Failing and Re-Learning Family Worship
Consistent, meaningful times of family worship have long been a goal of mine. When Stacy was pregnant with Jude, she obsessed over cloth diapers and baby slings while I spent my time perusing Amazon and bookstores for resources for family worship. I imagined reading and re-reading the Bible storybooks until we all had them practically memorized. I imagined catechizing Jude and hearing him say with a little kid voice that our chief end is “to glorify God and enjoy him forever.”
With this enthusiasm, I started family worship early with Jude. He was barely able to sit in his high chair when every morning after breakfast we began reading a chapter of The Big Picture Story Bible followed by prayer for our day and for an unreached people group. We did this faithfully for almost a year and a half, but over time we became increasingly frustrated with Jude’s lack of engagement. I would swing him in our backyard in Moldova repeatedly asking him the most basic catechetical question: “Jude, who created you? God. Jude, who created this tree? God. Jude, who created Peanut and Heidi (the dogs)? God.” Over and over and over again, I would ask and answer the creation question just hoping that he would attempt to say, “God,” even if it was only because he thought it an amusing sound to make.
Of course, at this same time, we were becoming aware of Jude’s developmental delays, which has only recently been diagnosed as Autism Spectrum Disorder. Feeling defeated by my inability to gain Jude’s interest, I put the story Bible on the bookshelf and left it there. “Some day in the future,” I told myself, “when we overcome these problems, I’ll start family worship again.” After this came our move back to America and the resultant hectic schedule. Any random attempts to revive family worship have been unsuccessful.
When I saw on my syllabus this semester that Dr. Whitney would be teaching on family worship, I thought cynically, “I’m sure he’s never tried to lead a child on the Autism Spectrum in family worship,” and when the day came for his lecture on the subject, I entered the hour with bitterness in my heart. However, my bitterness dissipated as Dr. Whitney made a point that I had never understood before. I had restricted the goal of family worship to engaging children, but Dr. Whitney emphasized that even newlyweds should be worshiping together through Scripture reading, prayer, and song.
Family worship isn’t for children alone. It is for any and every family member capable of being involved. Stacy Leigh and I both need to worship together. As we fight the spiritual battles of discouragement, depression, and despair, we need to strengthen one another through times of worship together, and, as a husband, it is my duty before God to provide such experiences. Previously, my misguided expectations resulted in an unsuccessful practice. With Advent beginning this Sunday, I want to recommit to the practice of leading my family—and more specifically my wife—in worship. I know that doing so will never be easy as Satan desires to keep us from the worship of God and to deprive our family of spiritual food. Yet, I am confident that a clearer, truer expectation for family worship will result in a more profitable experience, and I hope that one day when Jude is capable of joining us, we will have already established a consistent, meaningful family tradition.
A couple of weeks ago, Stacy attended a meeting at the seminary hosted by Chosen Families, a ministry which focuses on hidden disabilities. At the meeting, someone recommended a sermon by John Piper on John 9:1-4 entitled “Why Was This Child Born Blind?”
When God has something to teach us, he often confronts us with the same truth in a number of different ways. The truth of this passage as expounded by John Piper was right in line with what God had been teaching me already over the past few weeks (which I blogged about last week here). Piper explains that “suffering can only have ultimate meaning in relation to God.”
I understand how people would want to explain away the obvious meaning of Jesus‘ explanation of the man’s blindness—”that the works of God might be displayed in him.” How could God be so selfish as to ordain my suffering or, even worse, my child’s suffering for his own glory? Undoubtedly this is a hard pill to swallow, and it makes no sense apart from a belief that God is our greatest good. As John Piper says in the “cleaned-up” manuscript of the sermon:
[F]or our suffering to have ultimate meaning, God must be supremely valuable to us. More valuable than health and life. Many things in the Bible make no sense until God becomes your supreme value.
I hope that this sermon will be as great an encouragement to your family as it was to our family.




